From Ruth Lapp:
Please join us at at Dayton Island Park on Sunday, May 20, 2012 at noon to support the GREAT STRIDES walk to raise funds for Cystic Fibrosis. Hank and I are walking with a great team including our granddaughter Lilly who has cystic fibrosis. This is the Cystic Fibrosis Foundation's (CFF) largest and most successful national fundraising event. Cystic fibrosis is a life shortening, inherited disease. The CFF is a powerful advocate and supporter of those with cystic fibrosis. The February 23, 2011, New York Times ran an article about a very promising new drug VX 770. In January this year the drug, now known as kalydeco, was approved by the FDA for use among a select group of CF patients. The CFF was an early supporter of this and other drugs that hold hope for a cure.
For more info, click here.
Tuesday, April 24, 2012
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